Our Story
With a fast-moving incurable disease like ALS, people living with the disease have to live and share what’s working at the speed of ALS. Unfortunately, existing groups and resources are scattered, making it difficult to connect in real-time.
We brought this problem to our executive team at Salesforce, stating that the ALS world needs to move as quickly as the tech world. Their response? Go.
The CEO of Slack, Denise Dresser, and the President of Regulated Industries, Mark Sullivan, pooled their resources and built an entire team to build out this vision. We had technical experts and business leaders taking calls every weekend to work on this for no reason other than to help the ALS community.
And now, the vision is real! We’ve built a patient community for those living with ALS in Slack.
For those who don’t know Slack — Slack is an incredible platform to chat and connect. Slack has allowed us create a digital headquarters for ALS that can be accessed anywhere.
Imagine you have a question about adaptive equipment, or just learned about a new clinical trial- you can open Slack and talk to your fellow pALS. With dedicated channels for various topics and interests, from genetic variants to veterans to financial tips, you can find your community within our platform.
Using Eyegaze? Great! We created Eyegaze mode to ensure that all pALS will be able to use Slack easily.
Our goal is to have everyone living with ALS across the globe in this Slack community, and eventually we'll open this up to families, caregivers, ALS organizations, and providers. If you're interested in joining the community, head to the Join Us page. See you in Slack!
We brought this problem to our executive team at Salesforce, stating that the ALS world needs to move as quickly as the tech world. Their response? Go.
The CEO of Slack, Denise Dresser, and the President of Regulated Industries, Mark Sullivan, pooled their resources and built an entire team to build out this vision. We had technical experts and business leaders taking calls every weekend to work on this for no reason other than to help the ALS community.
And now, the vision is real! We’ve built a patient community for those living with ALS in Slack.
For those who don’t know Slack — Slack is an incredible platform to chat and connect. Slack has allowed us create a digital headquarters for ALS that can be accessed anywhere.
Imagine you have a question about adaptive equipment, or just learned about a new clinical trial- you can open Slack and talk to your fellow pALS. With dedicated channels for various topics and interests, from genetic variants to veterans to financial tips, you can find your community within our platform.
Using Eyegaze? Great! We created Eyegaze mode to ensure that all pALS will be able to use Slack easily.
Our goal is to have everyone living with ALS across the globe in this Slack community, and eventually we'll open this up to families, caregivers, ALS organizations, and providers. If you're interested in joining the community, head to the Join Us page. See you in Slack!